mean mama


hi
May 29, 2008, 11:36 am
Filed under: Uncategorized

Haven’t checked in for a while, I guess.

MBB is doing well. He is anemic, which is typical for a month-old preemie. He is getting some treatment for it, but it’s not a big deal, at this point at least.

Yesterday we had a meeting with MBB’s doctors about when he might be released (we asked for this meeting). They said that they don’t release babies when they are still having bradycardia or desats in their sleep, no matter how quick the episodes are or how quickly the baby brings himself out of it. The baby still has to go a whole 5 days without any episodes (he did reach day 5 a few days ago and then proceeded to have a (minor) brady that day, and the next day as well. insanity.) We already knew about this policy, of course.

Our hospital is very strict. Even the pulse rate that defines an episode to be noted is a more conservative one than at other hospitals. I have mixed feelings about all of this. Sometimes I think it’s good to be strict and other times I just roll my eyes. The hospital rarely sends babies home on monitors, but noting that we have been in the hospital since 5 weeks before MBB was actually delivered, they said that we could go home with a monitor if we needed to get out of there.

Monitors are not a simple solution. First of all, they go off all the time for the slightest movement and you have to determine whether the episode was real or not (usually not). Second, they are loud- very loud. Third, the baby is supposed to be hooked up whenever he is sleeping, which, let’s face it, is most of the time for a preemie. And that means that whenever you are out for a walk, even, the monitor needs to come too. And there is a tape in it, so it’s not like you can just say, “Oh yeah, we had it on all day,” and then not have it on. Further, you have to work in cooperation with a pulmonologist to determine how long he has to stay on the monitor – no one you’ve ever met before, no one who knows your case personally.

P and I determined that we would leave MBB in the hospital for about 1 1/2 more weeks, until he reaches around 38 weeks gestation, hoping he’ll be episode-free by then. And if he’s not, we’ll bring him home on a monitor.

Of course, we have to hope that nothing else wacky happens between now and then to extend his stay. Fingers crossed.

I’m happy and uneasy at the same time. When you leave the NICU, you want it to be over. Last time we left the NICU, it most certainly was not over – for what seemed like a year. Going home on a monitor makes it definitively not over.

Hm.

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6 Comments so far
Leave a comment

Fingers crossed that the next week and a half is what he needs and you come home with a wireless baby for good!

Comment by Jen (yup, another one)

Amen.

We went home on that monitor (albeit for different reasons) with D and yes, you do want it to be over…I think that, for me, it was more that I just wanted things–my baby really–to be “normal” and having that monitor around reminded me that she wasn’t ‘normal’ in the newborn sense.

Hope you get your “over” or “normal” soon as soon can be. You will, it’s just a matter of when 🙂

Comment by Dee

I can understand your dilemma. Hope the wee one is well enough to come home soon!

Comment by mrs.spit

So glad to see an update! Here’s hoping the next week and a half goes well for MBB and your family. I hope this time when you leave the NICU, it’s for good.

Comment by JB

Thanks for the update. I’m glad you’re making decisions that are right for your family, stressful and uncertain though they may be.

Hugs to you and your fam. Let us know if you need anything.

Comment by Co

The monitor was annoying. And loud. And it sucked trying to tell people at the grocery store why my baby had wires coming off her. But I don’t know how I could have survived her first three months without it. Fortunately it only went off for real twice.

Comment by kari




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